In this podcast:
Recorded at the 2025 Patients as Partners in Clinical Research conference, patient advocate and caregiver Dr Justin Hopkin, University of Rochester, describes his family's journey before, during and after his son was diagnosed with a rare, life-threatening disease.
Dr Hopkin talks about the process of getting a diagnosis, the critical role of a clinical trial for his son, the impact on his other children, and his advice for medicine developers and clinical trial designers.
Follow along with Dr Hopkin's slides by clicking here.
For more information, go to PatientsAsPartnersConference.com
Moderators
Adrelia Allen, PharmD
Executive Director, Clinical Trial Patient Diversity, Global Clinical Trial Operations
Merck Research Laboratories
Speakers
Justin Hopkin, MD
Patient Advocate / Division Chief, Hospital Medicine / Chairman Emeritus
University of Rochester / National Niemann-Pick Disease Foundation
This content was created by The Conference Forum staff. The Fierce editorial team did not contribute to this work.