Bio Products Laboratory is partnering up with the National Hemophilia Foundation for a campaign aimed at boosting awareness of an extremely rare bleeding disorder known as hereditary factor X deficiency.
Only one in a million people are estimated to have this disorder that may cause unusual or excessive bleeding or bruising, heavy menstrual bleeding in women, painful or swollen joints, nose bleeds and bleeding gums.
Because the symptoms are so varied, patients may go years before being diagnosed. There is, however, a blood test that can be done to determine whether someone has the disorder, and it can be treated with plasma-based treatments, the sort which Bio Products Laboratory manufacturers.
This includes Coagadex, a coagulation factor X (human) product, which was approved by the FDA back in 2015.
The pair launched the campaign on Hereditary Factor X Awareness Day, now in its third year and which took place Monday, Oct. 10, “to bring a very rare bleeding disorder to the forefront of people's minds, including the patients it impacts, the challenges they face, and the treatments that might help,” they said in a statement.
“After seeing the community engagement of Hereditary Factor X Awareness Day over the past two years, we more clearly understand the importance of raising awareness around Hereditary Factor X Deficiency for those living with the disorder and those yet to be diagnosed,” said Bob Rossilli, U.S. president and chief commercial officer, global business, for Bio Products Laboratory.
“We hope this day as well as ongoing efforts throughout the year help generate greater awareness of the signs and symptoms of Hereditary Factor X Deficiency. Our goal is to reach as many people and healthcare providers as possible because the ‘one in a million’ could be their patient or loved one.”