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Patient Advocacy

Neurocrine
Pharma

Neurocrine's Prader-Willi med tied to possible safety concerns

A year and a half after the approval of Vykat XR, clinicians connected to the Prader-Willi syndrome community are flagging potential safety concerns.
Fraiser Kansteiner Aug 13, 2026 9:40am
zebra

Zevra CEO drafts big ambitions for Miplyffa's US adoption curve

Jun 3, 2026 11:17am
visual of a diverse set of hands joining together

J&J survey underscores the power of patient community in IBD

Nov 7, 2025 5:00pm
Vertex

CF buyers club aims to grow access to Vertex's Trikafta

Oct 24, 2025 11:17am
DNA

Sarepta shares more Elevidys safety data

Aug 18, 2025 11:32am
Astellas

Astellas re-ups action week to connect patients, advocacy groups

May 30, 2025 9:35am

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